Conference Presentations
Since its inception, ICISG has made several presentations at every UICC Cancer Congress. These presentations have proven beneficial in promoting ICISG and providing an opportunity for networking between cancer organizations interested in starting or enhancing a CIS.
World Cancer Congress, Kuala Lumpur 2018
Pre-Congress Workshop: Planning, Establishing & Running a Cancer Information Service (CIS)
- Planning, Establishing & Running a CIS
- Defining Your CIS Framework
- Financing Your CIS
- Staffing Your CIS
- CIS Helplines and Example Call
- How ICISG Can Help
- CIS example: National Cancer Society Malaysia
Congress Session: Examining the impact of cultural diversity on a person’s experience of cancer, and its influence on screening participation, time to diagnosis and information and support seeking behaviors
- Mai Palagi-How Samoan people’s view of cancer and illness can affect their health seeking behaviors
Malama Tafuna”i (Samoa) - Learning Experiences of Malay Muslim Woman Breast Cancer Survivors at a Malaysian Cancer Resource Center
Mariana Yusoff (Malaysia) - Health Consequences of Nuclear Weapons Testing in the Marshall Islands
Neal Palafox (USA) - Living Stronger Than Cancer
Sharon Lee (Malaysia) - Lost in Translation: Exploring the nature of information and support accessed by non-English speakers to an Australian cancer helpline
Katherine Lane (Australia)
Congress Session: Ask me about trials – strategies to empower patients and enable clinicians in the discussion about cancer clinical trials
- Showcasing the Cancer Information Service – National Cancer Institute (USA).
Mary Anne Bright, National Cancer Institute – USA (United States) - Multi-component approach to improving patient access to trials. The experience in Victoria, Australia.
Christie Allan, Cancer Council Victoria (Australia) - Communicating about Clinical Trials.
Verna Lavender, Oxford Brookes University (United Kingdom) - Engaging clinical nurse specialists and research nurses in enhancing patient access to clinical trials.
Anne Croudass, Cancer Research UK (United Kingdom)
2018 ICISG General Assembly: Virtual Cancer Information Service: The experience of the American Cancer Society’s National Cancer Information Center (NCIC) transitioning to a completely virtual work from home operation to provide support to people affected by cancer.
World Cancer Congress, Paris 2016
Theme: Information for empowerment: providing high quality information for patients to help them work in partnership with their doctors and health care professionals
- Mentoring as a process in building up a CIS
Saunthari Somasundaram (Malaysia) - ICISG website as a tool for help
Kevin Babb (USA) - Understanding the cancer information needs of people with limited health literacy and numeracy
Aoife McNamara (Ireland) - Connecting audiences via online tools
Satu Lipponen, (Finland)
Theme: Different Voices Different Channels: Delivering information for patients through multiple Channels in a Multimedia Age
- A multi media approach to providing cancer information in Italian, using helpline, printed materials, DVDs online information and social media
Laura Del Campo (Italy) - Dr Dave and his amazing radiotherapy machine
Megan Chiswell (Australia) - Developing a strategy to integrate traditional media with social media to meet the needs of a population form wide ranging cultural backgrounds, age groups and levels of access to technology
Sharon Lee (Malaysia) - Introducing 1-2-1 online chat with a nurse
Martin Ledwick (UK) - Utilising webinars to empower and support people affected by cancer
Annie Miller (Australia)
Behavioral Research in Cancer Conference, Sydney, Australia, May 2015
Email a Cancer Nurse: A nurse-led service encompassing emotional support with information or advice for people affected by cancer (oral presentation)
Monica Conway, Katherine Lane, Anna Boltong; Australia
Integration of Referral to Cancer Council support services into usual clinical care-a pilot study (oral presentation)
David Marco, Anna Boltong, Vicki White; Australia
World Cancer Congress, Melbourne 2014
Theme: Joining Forces Through Social Media – exploring global information and support seeking behaviors
- The Role of Social Media in Cancer Information Provision
Chris Donkin (Denmark) - Providing Information Through Multiple Channels
Martin Ledwick (UK) - Audience & Channels
Kevin Babb (USA) - Patient Access and Support & Macmillan Connected Case Study
Jenny Ritchie-Campbell (UK) - Sources of Health & Cancer Information
Lilnabeth Somera (Guam)
World Cancer Congress, Montreal 2012
Theme: The use of social media in providing cancer information – what we know and what we have learned
- Use of emerging technology in cancer information: An international snap shot
Michael Jefford (Australia), Satu Lipponen (Finland) - Social media and how we use it: A UK perspective
Martin Ledwick (UK) - Challenges and successes with use of new media tools in the provision of cancer information
Chuck Westbrook (USA) - European perspective on using social media in supportive care
Heidi Brorson (Norway) - European perspective on using social media in supportive care
Heather Sinardo (Canada)
Theme: The role of cancer information services in enabling informed decision making
- The role of CIS in enabling informed decision making
Marion Morra (USA) - Improving your cancer information services for supervisors and managers of a CIS
Chris Thomsen (USA) - Key elements for operating and managing a CIS
Cora Honing (Netherlands) - Testing new approaches to delivering information
Martin Ledwick (UK)
International Cancer Education Conference – October 2010
The Role of Cancer Information Services in Cancer Control
Chris Thomsen, USA, Monika Preszly, Germany
World Cancer Congress, Geneva 2008
- Meeting the need for cancer information: A UK perspective
Martin Ledwick (UK) - Cancer Information Service; An essential component of cancer control
Kevin Stein (USA) - Managing an existing cancer information service: Advance course
ICISG Board Members - Advance issues of staff retention/attrition
Doreen Akkerman and Amanda Hordern (Australia)
World Cancer Congress, Washington DC, 2006
Key elements of a successful CIS:
- Recruiting and training of qualified staff
- Finding reliable resources of information
- On-going quality assurance and collecting inquiry data
- Collaboration with other relevant organizations and promoting your CIS
- Development of a National Public Educational Facility for Preventing Cancer: Progress, Problems and Lessons Learnt
Cora Honing, Director of Prevention and Patient Support, Dutch Cancer Societ;, Ingrid Aubry, Manager Cancer Awareness System, French National Cancer Institute, Monika Preszly, Manager, Cancer Information Service, German Cancer Research Center, Flora Yong, Senior Nurse Manager, Cancer Education & Information Service, National Cancer Centre Singapore.
Physicians and CIS working together: extending into the Community
Catherine Dickens, LondonUK.Antonia Dawson, MacMillian Cancer Support, London, UK.
Les clés de la réussite pour un service d’information sur le cancer
Robert Desmarais, Directeur, Information et Soutien Société canadienne du cancer, Ingrid Aubry, Responsable du programme de veille, Institut national du cancer, France,Anne Vézina, Directrice nationale Services d’ Information Société canadienne du cancer
World Cancer Congress, Dublin 2004
Assessing Need: Cancer Information Service
D. Akkerman, Director, Cancer Information and Support Service, Anti-Cancer Council of Victoria, Marion Morra, President, Morra Communications, Anne Vézina, Director, Cancer Information, Canadian Cancer Society
Macmillian Cancer Relief Mobile Cancer Information Service
Catherine Dickens, Head of Information Services, Macmillan Cancer Relief
Referral for information & support as part of routine cancer management
D. Hill, P. Livingston, V. White, D. Akkerman, Cancer Council, Victoria
Supervising and supporting your Cancer Information Services staff
D. Akkerman, Director, Cancer Information and Support Service, Anti-Cancer Council of Victoria
Using short survey to evaluate customer satisfactions: Email and telephone
Chris Thomsen, Director, Office of Communications and Public Liaison, National Center for Complementary and Alternative Medicine, National Institutes of Health, Bethesda, Maryland, USA
New ways of communicating cancer information: A modular approach
Monika Preszly, Cancer Information Service, German Cancer Research Center
World Cancer Congress, Brighton 2001
Integrating technology with the human touch through Dialogue – The Canadian Cancer Society’s Cancer Information Service
Donna Czukar and Anne Vézina, Canadian Cancer Society
Using Instant Messaging
Thomsen CA, Stengle WA, Worrell MA. Ballard D