Conference Presentations

World Cancer Congress, Paris 2016

Theme: Information for empowerment: providing high quality information for patients to help them work in partnership with their doctors and health care professionals

  1. Mentoring as a process in building up a CIS
    Saunthari Somasundaram (Malaysia) 
  2. ICISG website as a tool for help
    Kevin Babb (USA)
  3. Understanding the cancer information needs of people with limited health literacy and numeracy
    Aoife McNamara (Ireland)
  4. Connecting audiences via online tools
    Satu Lipponen, (Finland)

Theme:  Different Voices Different Channels: Delivering information for patients through multiple Channels in a Multimedia Age

  1. A multi media approach to providing cancer information in Italian, using helpline, printed materials, DVDs online information and social media
    Laura Del Campo (Italy)
  2. Dr Dave and his amazing radiotherapy machine
    Megan Chiswell (Australia)
  3. Developing a strategy to integrate traditional media with social media to meet the needs of a population form wide ranging cultural backgrounds, age groups and levels of access to technology
    Sharon Lee (Malaysia) 
  4. Introducing 1-2-1 online chat with a nurse
    Martin Ledwick (UK)
  5. Utilising webinars to empower and support people affected by cancer
    Annie Miller (Australia)

Behavioral Research in Cancer Conference, Sydney, Australia, May 2015

Email a Cancer Nurse: A nurse-led service encompassing emotional support with information or advice for people affected by cancer (oral presentation)
Monica Conway, Katherine Lane, Anna Boltong; Australia

Integration of Referral to Cancer Council support services into usual clinical care-a pilot study (oral presentation)
David Marco, Anna Boltong, Vicki White; Australia

World Cancer Congress, Melbourne 2014

Theme: Joining Forces Through Social Media – exploring global information and support seeking behaviors

  1. The Role of Social Media in Cancer Information Provision
    Chris Donkin (Denmark)
  2. Providing Information Through Multiple Channels
    Martin Ledwick (UK)
  3. Audience & Channels
    Kevin Babb (USA)
  4. Patient Access and Support  & Macmillan Connected Case Study
    Jenny Ritchie-Campbell (UK)
  5. Sources of Health & Cancer Information
    Lilnabeth Somera (Guam)

World Cancer Congress, Montreal 2012

Theme: The use of social media in providing cancer information – what we know and what we have learned

  1. Use of emerging technology in cancer information: An international snap shot
    Michael Jefford (Australia), Satu Lipponen (Finland)
  2. Social media and how we use it: A UK perspective
    Martin Ledwick (UK)
  3. Challenges and successes with use of new media tools in the provision of cancer information
    Chuck Westbrook (USA)
  4. European perspective on using social media in supportive care
    Heidi Brorson (Norway)
  5. European perspective on using social media in supportive care
    Heather Sinardo (Canada)

Theme: The role of cancer information services in enabling informed decision making

  1. The role of CIS in enabling informed decision making
    Marion Morra (USA)
  2. Improving your cancer information services for supervisors and managers of a CIS
    Chris Thomsen (USA)
  3. Key elements for operating and managing a CIS
    Cora Honing (Netherlands)
  4. Testing new approaches to delivering information
    Martin Ledwick (UK)

International Cancer Education Conference – October 2010

The Role of Cancer Information Services in Cancer Control
Chris Thomsen, USA, Monika Preszly, Germany

World Cancer Congress, Geneva 2008

  1. Meeting the need for cancer information: A UK perspective
    Martin Ledwick (UK)
  2. Cancer Information Service; An essential component of cancer control
    Kevin Stein (USA)
  3. Managing an existing cancer information service: Advance course
    ICISG Board Members
  4. Advance issues of staff retention/attrition
    Doreen Akkerman and Amanda Hordern (Australia)

World Cancer Congress, Washington DC, 2006

Key elements of a successful CIS:

  1. Recruiting and training of qualified staff
  2. Finding reliable resources of information
  3. On-going quality assurance and collecting inquiry data
  4. Collaboration with other relevant organizations and promoting your CIS
  5. Development of a National Public Educational Facility for Preventing Cancer: Progress, Problems and Lessons Learnt
    Cora Honing, Director of Prevention and Patient Support, Dutch Cancer Societ;, Ingrid Aubry, Manager Cancer Awareness System, French National Cancer Institute, Monika Preszly, Manager, Cancer Information Service, German Cancer Research Center, Flora Yong, Senior Nurse Manager, Cancer Education & Information Service, National Cancer Centre Singapore.

Physicians and CIS working together: extending into the Community
Catherine Dickens, LondonUK.Antonia Dawson, MacMillian Cancer Support, London, UK.

Les clés de la réussite pour un service d’information sur le cancer
Robert Desmarais, Directeur, Information et Soutien Société canadienne du cancer, Ingrid Aubry, Responsable du programme de veille, Institut national du cancer, France,Anne Vézina, Directrice nationale Services d’ Information Société canadienne du cancer

World Cancer Congress, Dublin 2004

Assessing Need: Cancer Information Service
D. Akkerman, Director, Cancer Information and Support Service, Anti-Cancer Council of Victoria, Marion Morra, President, Morra Communications, Anne Vézina, Director, Cancer Information, Canadian Cancer Society

Macmillian Cancer Relief Mobile Cancer Information Service
Catherine Dickens, Head of Information Services, Macmillan Cancer Relief

Referral for information & support as part of routine cancer management
D. Hill, P. Livingston, V. White, D. Akkerman, Cancer Council, Victoria

Supervising and supporting your Cancer Information Services staff 
D. Akkerman, Director, Cancer Information and Support Service, Anti-Cancer Council of Victoria

Using short survey to evaluate customer satisfactions: Email and telephone
Chris Thomsen, Director, Office of Communications and Public Liaison, National Center for Complementary and Alternative Medicine, National Institutes of Health, Bethesda, Maryland, USA

New ways of communicating cancer information: A modular approach 
Monika Preszly, Cancer Information Service, German Cancer Research Center

World Cancer Congress, Brighton 2001

Integrating technology with the human touch through Dialogue – The Canadian Cancer Society’s Cancer Information Service 
Donna Czukar and Anne Vézina, Canadian Cancer Society

Using Instant Messaging
Thomsen CA, Stengle WA, Worrell MA. Ballard D